June 24, 2012
At dinner, my family was talking about the memorial:
“What did you think about Noah’s Life Celebration, Zeke?”
“Good.”
“What was your favorite part?”
“Seeing all Noah’s Lego guys right in front of my face.”
“What did you think about it, Nate?”
“It was fun AND sad. You know what would have made it the best ever, Mommy?”
“No, what?”
“If someone else had passed away and Noah was there playing with me.”
“I couldn’t agree with you more, Nate.”
June 6, 2012
My very talented and even nicer friend, John Matta has been drawing hysterical comics on napkins. He’s vowed to draw one a day for an entire year.
I helped him today:
Go see the funny, poignant and very bad penmanship of my napkin.
PS Thanks for asking, Matta. The parts of Philly I miss have you in them.
May 30, 2012
…our dreams, shattered.
In Lieu of cards, gifts or flowers…PLEASE donate to www.Noahslightfoundation.org
Our fight is NOT over!
May 21, 2012
…and makes $30,000. for good measure!
Noah and I share the mike at station 96.5 WDBO. (thanks, Carl!) I was reminded to never share the stage with kids or animals…Noah stole the show:
“Knock knock”
“Who’s there?”
“Noah”
“Noah who?”
“No-any good jokes?”
And a special shout out to Mix 105.1 Scott MacKenzie, Dana & Jay – who are always there for me…and we laugh!!! I pee myself just a little every time I’m there. (probably why they didn’t let me in the new studio)
We found out that if you build it (and print up tons of posters, promote it on the radio and work tireless amounts of hours spreading the word) they will come:
Thank you to everyone who bought tickets, donated money and bid on auction items. You’ve made the “Light” a little brighter!
Somehow, Amber was able to get up on stage to welcome everyone. Her grace under fire amazes and humbles me every single day. Then she spread the good news about the NK Cells “Noah Protocol” that we’re trying to fund. All ticket sales and proceeds from that night went directly to Noah’s Light Foundation. If you were unable to attend, please click on the link, then hit the “DONATE” button.
One extra nice thing that happened that night is a new friendship with an amazing performer, Dale K. When I put out the word for someone to share the stage with me, Dale K not only offered but donated his time and talent 100% that night. His hypnosis show was so hilarious, I was sweating having to go on after him! Thank you, Dale K. I owe you a BIG one! And speaking of BIG ones:
Then it was time for my rantings:
So many people to thank (Tracey Prever) I don’t know where to start (Suzanne & Carl Nixon) I wouldn’t want to leave anyone out (Orlando Improv & Staff). There were so many people (Rachel & gang at Nth Degree FX) that made the evening a success (Tony & Robin Malatino and Purple Cow) Please go to this link for more people and LOTS of awesome Rachel photos.
Stay tuned for the 3rd annual “Laughter Heals” Benefit next year! (No, I will not be headlining again…who will? That’s a HUGE surprise!)
March 27, 2011
November 4, 2010
I will admit some fault. I did choose 2 days before Halloween to change my hair color.
None-the-less…
Being asked by SEVERAL women, “Wow! You really go all out for Halloween, huh?” still felt like a sucker punch to the gut. Thanks, “Sistas”. Way to make a girlfriend feel “Witchy”.
This is my hair color before. (Yes, that's a real gator & snake...help me, please.)
After. Sure, it's bright, but Halloween? Really?
Sometimes a Super Hero has to hide their super powers and not use them for petty selfish reasons…
Superman doesn’t use his X-ray vision to peep where he shouldn’t; Spiderman doesn’t use his web to wrap up Mary Jane and keep her as his love-slave…ehem…but I digress…
When I received this comment, I didn’t use my super heckler come-back power to say, “No, it’s not for Halloween…it’s your husband’s favorite color.”
With great power, comes great responsibility…
Sometimes it’s really hard to be burdened with this ability and only be able to use it for the good of all mankind.
August 4, 2010
Nate and Noah have their first-ever Jedi sleep over.
Noah had his MRI yesterday to see if all the treatments have been working. Our fight isn’t over.
SO… we are spending all of our time finding joy, laughter and new Legos right now.
Carpe Diem.
May 10, 2010
Zeke played with a bucket on his head. How much money have we spent on toys?
And Nate...well, Nate likes to "make mud, not war".
Since baths were needed, I decided (after yet another morning of screaming bed-head taming) since the temperature has hit the 90s, that it was time for the summer buzz cuts. Nate’s been through it several years in a row and loves it but it was Zeke’s first dance with the clippers.
Before...
After!
Zeke took a LOT more coaxing…Dora on the TV; popsicle in hand AND a promised lollipop when it was all done. Hey, I’m not ashamed. I would have let him drink wine and smoke cigarettes if it would have made him sit still.
Before...(yeah, I know)
After!
April 9, 2010
Sometimes the answer is right there in front of you, but you’re just to “old-school” to see it.
"Let's be on the dark side, Nate!" "OK Noah, but just pretend, right?"
Amber and I set up these iChat cameras so Nate & Noah could see each other when they talked. They talk on the phone often but it’s hard for them to hear/understand each other.
We had no idea what it would turn into.
As soon as they saw each other they got so excited:
“Nate, I’m going to get my Star Wars guys, I’ll be right back.”
“I’m going to get mine too, Noah…I’ll be right back, too.”
They each ran to their rooms and brought back arms filled with Jedis & Sith Lords.
And they played. And they played. And they played.
2 hours went by and they were still going strong. Laughing, joking and killing each other’s guys. It warmed my heart to see them playing so joyfully. And it warmed my heart because I got to nap a little on the couch beside them.
“Mommy? I have to go to the bathroom. Can you pause Noah for me?”
“What do you mean, Nate?”
“Can you hit pause on the remote so I won’t miss any of Noah while I’m in the bathroom”.
“It doesn’t work like that Nate, Noah isn’t a recording.”
“Nate…I have to go to the bathroom too! Let’s go at the same time…on your mark…get set…go!”
Do you have any idea what the attention span is of a 5 & 6-year-old? Cartoons are only 15 minutes long if that gives you any idea. These two boys played with each other in front of this screen for 3 hours. 3 hours! That’s a week and a half in kindergartenland. I finally had to say, “Time for supper.” and then had to listen to the whining, crying and foot stomping pleas, “I don’t want to eat, I want to play with Noah! PLEASE, Mommy! I can eat any time. I want Noah!”
The final score that day:
Best friends 1
November 24, 2009
I haven’t blogged in a few weeks because I’ve put all my energy into helping our dearest friends. Nate’s best pal in the world, Noah, has been diagnosed with Medullablastoma. He and his family are in the fight of their lives right now so that means our family is, too.
Nate and Noah
Dennis, Amber, Landin, Me, Zeke, Mark, Nate & Noah using the "Force"!
Please visit Noah’s blog: jedinoah for updates on his victories. You can make a donation at any Bank of America. Just ask to deposit into the “Noah Larkin Medical Fund”. Thank you in advance for your generosity and your prayers.
Stinky Flowers 