Our Votes Weren’t Counted…HELP!!!

As most of you know, Nate’s BFF lost his battle with brain cancer this past May. As hard as this was for all of us, we’ve chosen to keep fighting! Noah wasn’t able to receive the protocol named after him, but other children are waiting. Noah’s Light Foundation is supporting this research as well as support for siblings and families of the children diagnosed.

Chase bank is giving away $250,000. to the charity with the most votes!!! They had trouble with the site in the beginning, so we’re having to ask everyone to vote again. Will you please take a few minutes to help? It costs you NOTHING!! Thank you so much. (See instructions below…)

Hello, Noah’s Light Foundation friend,Wow, we’ve seen an overwhelming amount of support on our website and Facebook page! But our Chase Giving votes seem to be falling behind, if you have had trouble voting, my deepest apologies!I received this from Chase  – Amber, We are sorry for this. We experienced some technical difficulties earlier in the program but then have since been fixed. Please have your followers vote again.  Thanks for your patience, Chase Community Giving Team Please, don’t give up, I still believe we can still make a difference for these kids! The Good News! We still have 6 day’s until Noah’s birthday and the voting ends – I have some tips this time: How to Vote – Log into or sign-up on Facebook. Click this link and hit “Vote” – You may have to “Allow Application”Yeah! You voted for Noah’s Light Foundation. If you don’t have “bonus votes”, then you are done. If you have bonus votes, then you have to vote your second vote on someone other than NLF :-(, then come back to Noah’s Light Foundation and use the bonus! If you are a Chase customer, you can go to to Chase.com/ChaseGiving, log in, and earn another bonus vote! After you vote, please be sure to ask your friends to vote and forward it to: All of Your Friends Your Company Directory Your LinkedIn Your Church Directory Your Email address book Your Client Database Post and Share on Facebook (when friends follow your link – you get more times to vote) Tweet it  You tube it Share it with your School Post it on your Blog Post it on others blogs… share, share, share! (Note: if you search for us, please use the search term “Noahs Light”) Keep trying 🙂  –  we can’t give up on these kids! Amber www.noahslightfoundation.org

 

Our Hearts Are Broken…

…our dreams, shattered.

www.Jedinoah.wordpress.com

In Lieu of cards, gifts or flowers…PLEASE donate to www.Noahslightfoundation.org

Our fight is NOT over!

 

Israel on 3,700 Shekels a Day

When traveling, I find it best to blend in with the locals as best you can.

I think I blended:

In fact, I blended so well that locals were all speaking Hebrew to me. When I stopped them and said I was from America, they would always respond, “But you’re Jewish, right?” I would tell them, “No, I’m not Jewish.” I was told, “You could be!” Uhhh…Thank you?

I was performing as part of a tour called “Comedy for Koby” a foundation that helps families who’ve lost loved ones to terror attacks. I can’t think of a better use for Comedy.

I went once before but that time I brought Mark and Nate. Nate was 2. The only thing I did on that trip was look for diapers and a place to change them. Oh, we climbed Masada…with Nate strapped to my back. 

But this time I got to be a tourist. In a nutshell I:

Went to the Souk (Avi lied…it was NOTHING like the mall.)

I bought some:

And didn’t buy:

I visited the Western Wall:

And covered some bases:

I felt illiterate:

But somehow understood:

I got my watch fixed:

And saw the bald head of the Governor of FL:

I met the most amazing people and made them my friends:

Now I know everything I need to know about the Kabbalah:

Oh, yeah…and I told some jokes (With Saleem, Avi Liberman & John Mulrooney) :

PS. Not sure, but I think I got married:

 

Guest Blogging for Jedi Noah:

I guest blogged for my best friend, Amber.

 

Our lives are on hold right now…

Nate and Noah have their first-ever Jedi sleep over.

Noah had his MRI yesterday to see if all the treatments have been working. Our fight isn’t over.

SO… we are spending all of our time finding joy, laughter and new Legos right now.

Carpe Diem.

 

Bridging the gap between best friends…

Sometimes the answer is right there in front of you, but you’re just to “old-school” to see it.

"Let's be on the dark side, Nate!" "OK Noah, but just pretend, right?"

Amber and I set up these iChat cameras so Nate & Noah could see each other when they talked. They talk on the phone often but it’s hard for them to hear/understand each other.

We had no idea what it would turn into.

As soon as they saw each other they got so excited:

“Nate, I’m going to get my Star Wars guys, I’ll be right back.”

“I’m going to get mine too, Noah…I’ll be right back, too.”

They each ran to their rooms and brought back arms filled with Jedis & Sith Lords.

And they played. And they played. And they played.

2 hours went by and they were still going strong. Laughing, joking and killing each other’s guys.  It warmed my heart to see them playing so joyfully.  And it warmed my heart because I got to nap a little on the couch beside them.

“Mommy? I have to go to the bathroom. Can you pause Noah for me?”

“What do you mean, Nate?”

“Can you hit pause on the remote so I won’t miss any of Noah while I’m in the bathroom”.

“It doesn’t work like that Nate, Noah isn’t  a recording.”

“Nate…I have to go to the bathroom too! Let’s go at the same time…on your mark…get set…go!”

Do you have any idea what the attention span is of a 5 & 6-year-old? Cartoons are only 15 minutes long if that gives you any idea. These two boys played with each other in front of this screen for 3 hours. 3 hours! That’s a week and a half in kindergartenland.  I finally had to say, “Time for supper.” and then had to listen to the whining, crying and foot stomping pleas, “I don’t want to eat, I want to play with Noah! PLEASE, Mommy! I can eat any time. I want Noah!”

The final score that day:

Best friends  1

Medulloblastoma 0